1 day ago Kim Lam has a chronic lung condition called Chronic Obstructive You Don't Look Sick: 'My lungs are broken but people don't think I am disabled' There are million disabled people in the UK, but for many of them, you Kim Lam, who has COPD, sitting on a hospital bed when she was having. 1 day ago MORE: You Don't Look Sick: 'My lungs are broken but people don't think I am disabled'. MORE: Kinder Bueno ice creams are finally available. these are the words that sting every person with chronic illness. Tuesday 10 Nov am time we talk about how some people have illnesses and disabilities that can't be seen easily, but it Yet people tell me that I don't look sick. . You Don't Look Sick: 'My lungs are broken but people don't think I am disabled'.
Look Sick: I don’t Don’t but think You people am disabled’ lungs broken ‘My are
Lung damage may be too slight to notice in the early stages of farmer's lung. However, each subsequent exposure increases tissue damage. A victim will soon begin to notice that they are short of breath.
At first, this makes strenuous work more difficult. Even routine tasks become too much after frequent, repeated exposure. Eventually, the victim may find it a struggle to even get out of a chair. The allergic reactions of farmer's lung are usually divided into either acute or chronic attacks.
Acute reactions are most noticeable but, by being ignored, the chronic form can do more long-term damage. Symptoms of an acute attack develop four to eight hours after exposure. They resemble flu or even pneumonia -- in extreme cases, the victim may go into shock and die! It is easy to see why these symptoms could be mistaken for a case of the flu.
That's why milder attacks are often left to "run their course", without a visit to a doctor. In the more extreme cases, the need for hospital care becomes obvious. Symptoms of an acute farmer's lung attack usually decrease after 12 hours, but may linger for up to two weeks.
Severe attacks can last as long as 12 weeks. It, too, is caused by exposure to very large amounts of dust. TODS symptoms are identical to those resulting from an acute farmer's lung attack. However, TODS is not and allergic reaction. While anyone can get TODS and can become very sick from this condition , most people recover completely. While acute attacks are most noticeable, the chronic form of farmer's lung is more common.
Gradual development often leads victims to dismiss the chronic form as something minor, like a nagging chest cold. This makes chronic farmer's lung especially dangerous. By the time an affected farmer goes to the doctor and the disease is diagnosed, there can already be serious damage.
Chronic farmer's lung results from repeated exposure to moldy dust. The quantities of dust may be so small that the farmer is hardly aware of them. Because the shortness of breath develops gradually, a victim may not even be aware of the change. Also, the last three symptoms -- weight loss, lack of energy and depression -- tend to push the other symptoms into the background.
The risks of becoming a victim of farmer's lung are fairly small. Studies suggest that fewer than 10 percent of farmers -- perhaps less than five percent -- are at risk of developing this condition. However, there is no way of finding out in advance whether or not you are immune.
Risks increase when crops have been stored in damp or 'tough' conditions. Working with such material outdoors poses minimal danger, because the moldy dust is quickly dispersed. The greatest danger occurs during the months when moldy crops are being handled indoors. Dairy farmers are the most common victims.
While farmer's lung is usually associated with the handling of hay, any moldy plant material can be responsible. The list includes grain, straw, silage, and even tobacco. Uncapping a silo or cleaning out a grain bin usually releases large quantities of moldy dust.
Victims often try to ignore the symptoms of farmer's lung. They find it easier to dismiss their condition as just a cold or flu that "won't go away".
This is dangerous -- any delay in prevention and treatment will increase lung damage! If you experience any of the following, contact your doctor immediately: To help your doctor make an accurate diagnosis, emphasize that you have been exposed to dust from moldy crops.
A series of procedures -- which might include a blood test, a chest x-ray, and a breathing capacity test may be used to confirm or disprove a tentative diagnosis. Farmer's lung can be controlled, but it can not be cured. In acute cases, the symptoms can be treated with bed rest and oxygen therapy.
Medication can be used to control symptoms in chronic cases. However, this can be dangerous, because damage to the lungs may continue without the victim's awareness. The only proven treatment for chronic farmer's lung victims is the avoidance of contact with moldy crop materials. Just as there is no way of curing the allergy once it has developed, lung damage can not be repaired.
In milder cases that are detected early, avoiding contact with the molds will prevent further lung damage. In severe cases, the victim will have to quit farming. There is no way of knowing in advance whether or not you are immune to the molds that cause farmer's lung. The only way to prevent this condition is to avoid contact with dust from moldy plant material.
While it is difficult to completely eliminate contact, there are several measures that will minimize exposure to the moldy dust. Once a person has farmer's lung, the only way to control it is to avoid all contact with moldy dust. This means doubling the precautions listed above. If possible, any dusty work should be handled by someone other than the victim. Ignoring these precautions will lead to progressively more serious lung damage.
If necessary, a farmer's lung victim should quit farming, rather than becoming permanently disabled. Most farmers enjoy their occupation. When they take a chance with farmer's lung, they are gambling on being forced out of a way of life they love. Even worse, they risk being too weak to do work of any kind! The simple precautions that minimize your chances of developing farmer's lung are mostly common sense.
Clearly, the risks of ignoring these preventive measures are not worth taking. The information and recommendations contained in this publication are believed to be reliable and representative of contemporary expert opinion on the subject material. The Farm Safety Association does not guarantee absolute accuracy or sufficiency of subject material, nor can it accept responsibility for health and safety recommendations that may have been omitted due to particular and exceptional conditions and circumstances.
Farm Safety Association Home Page. Not many people in day to day life know how to be empathetic or sympathetic so I just let it go. It is not that easy but it is that simple. Here is the problem; your friends and family? They are not the only ones you have to explain how you feel to are they?
Well, the Social Security Administration in particular. Here is the frustrating part. So obviously you can work when you are not relapsing! But how realistic is it to think you can hold down a career, a job , when every few days, weeks or months you need some time off because your symptoms are flaring?
At my best I still feel like crap! I really do want independence. I really do just want to be another contributing member of society who blends in with the crowd but that is not the hand I was dealt. I wish I turned green depending on how ill I was because people believe what they see and maybe then it would be easier for people to understand and not treat me like I am full of crap just looking for a hand out.
I would love some empathy, even some sympathy, but I never want pity. Good news - you're already subscribed! Let us know at contact MultipleSclerosis. Try again or let us know at contact MultipleSclerosis. You stated it very well. We are seen as spongers, dole bludgers and good for nothings and after 2 years of being out of work I have not been able to claim a single dollar.
I am 52 years of age, have never claimed anything in my life and have a Masters degree so clearly to not be able to use my skills means there is a reason! Who in their right mind would want this life yet when I need the help I get nothing and I know I am not alone. I was diagnosed a year and a half ago with relapsing remitting, I had been suffering from weird symptoms for years. I suffered pain through my body, random numbness, bladder incont.
As well as extreme exhaustion. It took all I had to get out of bed… Pain everywhere… Like the flu… Every muscle, every joint and I felt drugged I was so fatigued. My day consisted of fake smiles and how do you dos as I silently want to scream I hurt so bad. My hips hurt my legs feel like jello and wobbly… I almost loose it because I hurt so bad. Random cramping all over my body that last seconds and moves to the next location.
I start to slur my words, my legs get all weird and want to go different directions I can barely stay functional with the wave of fatigue that hits…. I like your article and agree with you. But do I think others should understand my problems? When I drag or shuffle my feet or when I round a corner too sharply and run into the wall. So, I try to do the things I can do. I correspond with friends by email, not with facebook etc. I hope you have good luck and wish you well. Sandy-Reading ur story felt so familiar to me.
I was diagnosed in my twenties I am now 54 I was an x-ray tech in a large, busy hospital. After 23 years of working at the same hospital in a job I enjoyed, the physical aspect became more evident.
Through the years I had issues with pain,numbness,major fatigue,etc. In reading your story, I know there are those people who truly understand. I have been reluctant to join any MS groups until now. I was diagnosed with MS in July of after thinking I was suffering from a stroke. I think the only reason I finally was approved was because my case was heavily documented by my doctors. I get my care through the VA. I am a part-time student and will be finishing my first year.
My hope is to practice in an environmental law firm as I hope to use this disease as a teaching tool. I will also tell you that I was diagnosed at age 40 and feel grateful that at this time I am mobile and self sufficient. Anyone with MS has suffered multiple losses. Mostpeople that I meet that is the only information they get.
You have to be around awhile before you get much more of my story. Even after being diagnosed 23 years ago I still contend with denial. MS is such a complicated disease. I was diagnosed at age At the time I was working night shift in a busy ER getting 50 to 60 hours a week. My first symptoms were optic neuritis where I lost sight in my R eye for about 10 days and had the worse headache ever.
Sounds like a severe migraine to me. Two weeks off for a planned vacation lots of rest and pain meds and I was all better by the time I went back to work. About 2 years later when the same symptoms reoccurred I was actually diagnosed with MS. My immediate reaction was pure anger!! No time for MS. Interferon treatment was fairly new and most of the time I felt fine was very active and having a lot of fun too. Needless to say I did not want to start a medicine that made me feel like I had the flu every other day.
I did not start taking interferon for 10 more years. I got married, had 2 children and then it was time to start treatment. Interferon here I come. It actually was not as bad as I had feared. I still chill and feel really bad 2 to 3 times a year from my injections.
My nursing career ended March 11, I had not been feeling well for weeks. Severe headaches, lots of stress at work, then it happened. The morning of March 11th I woke up, could not get out of bed. It was like I had a stroke on the right side of my body.
My 6 year old daughter had to help me dress, then my husband came home and to the hospital we went. I was admitted and took high dose steroids IV for the first time. It took 3 to 4 months to do rehab and get sort of back to normal. Stay home and raise your family, and take care of yourself so you can be there for them. So with lots of help from friends and family we made the 6 month wait for the disability to be approved. I would encourage anyone in the middle of that process to be very involved.
The dead line day for all my medical records came and the disability office had received NO records. I got my mom to drive me to the hospital I went to the medical records department and waited until they copied ALL my records. I went to the neurologist office I waited got those records.
Then my mother dove us to the nearest SS disability office and hand delivered everything. The office closes at 4: I got there at 4: Talk about a long, frustrating scary day. Just be involved in your care. We really are just a number in some aspects of care. Other than that the whole disability process went fairly well.
I need to thank my neurologist. I am stubborn and work really hard not to let MS rule my life. Fatigue is my biggest hurdle. I do what I can and the rest can wait till after my break. Positivity is KEY and it sounds like you have it down!
Dear Matt, I can so relate to your article. All my friends were stunned when I was denied. I got a lawyer — recommended by the local MS society — and was denied again. I fired them and hired another firm and this is my last shot. Meanwhile I took early SS at 62 and retired last year. And the hits keep coming. My friends tell me I need to complain more the doctor to get him on my side, keep a journal of my pain every day,etc.
My physical therapist thinks I have good days and bad days. And driving is harder and harder. You keep going, Matt. More like bad days and worse days. I had to give up driving 2 years ago and now am considering disability retirement but the people here are so understanding???
I feel like I need to bring pamphlets about MS around everywhere I go as I do not work around medically educated people.. Hi Matt Sorry about what you are going thru. My husband is a cancer survivor and is in trouble on his opiates. I am not suppose to express frustration and anger but be a real trooper. So, now I am reflecting on my current relationships.
Please, Tell Me Again How I’m NOT Disabled
Patients with end-stage COPD are usually ill for a long period of time with In that study, 82 patients with Global Initiative for Chronic Obstructive Lung Disease The first question in every interview was: 'Can you describe a normal day? . I don't know what good means, but eh, well, something that's broke cannot be fixed . As we in the chronic illness community like to point out: “Chronic means chronic.” Part of my frustration is that I know people are trying to help, and so I feel I need to be gracious in responding to their Except to my closest friends and family, I don't look sick. But for the healthy, when winter passes, so does cabin fever. “Fibromyalgia, I'm looking at you,” she wrote. “People who are really sick don't have hair like yours. . I did not receive very thorough medical care, so I do not know if I actually broke any bones or not, but it was said that Injuries · Kidney and urinary tract · Lung disease · Managing your health care.